Of course no one tells us WHY Utah has such a horrific number of sick kids and the reporter on the video doesn’t mention WHAT THAT RATE ACTUALLY IS (one in 47).
Utah Autism Coalition official discusses proposed legislation
Video: Christine Passey, Utah Autism Coalition: “Families across Utah have gone into bankruptcy, they’ve mortgaged their homes, and many have gone without therapy. It’s a really hopeless feeling as a parent, to know there is a therapy out there for your child but you cannot provide it . . . The cost of the therapy is $40,000 to $50,000 a year, if you’re providing it yourself. You can imagine that most families just can’t pull that money together out of pocket.”
It’s incredible that a disorder that affects one in every 47 children in Utah has gotten so little attention from lawmakers. Do insurance companies refuse to provide care for children who are blind and deaf in Utah? Why is there such discrimination if the unfortunate child has a diagnosis of autism?
We’re talking about children who often can’t speak and who require constant care. Many have concomitant health problems like seizures and bowel disease.
In the face of this, parents are left on their own to deal with an often devastating condition. Lawmakers in Utah need to realize that when we talk about autism, we’re talking about CHILDREN with autism. No one has ever found a comparable rate among adults–especially adults with severe autism whose symptoms are easily recognized. If money isn’t spent on these disabled children NOW, the taxpayers of Utah will be paying for lifetime care cost when they’re adults.
Younger siblings of children with autism may show signs of abnormal development or behavior as early as 1 year of age, according to a new study.
The findings suggest that parents and doctors should keep close watch for such symptoms at an early age among younger siblings of children with autism so problems can be addressed sooner, the researchers said.
The disorder that officially has no known cause or cure continues to strike children for no apparent reason. There’s nothing a mainstream doctor can tell a new mother so that her child that was born healthy and is developing normally won’t also suddenly lose learned skills and regress into autism by age two. Parents are tired of hearing about new ways of diagnosing a disorder no one is able to prevent.
It seems that this is what Deer has been reduced to……………….
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This is something you’ll never see in the NY Times and it would have been nice if the writer had actually noted the autism rate.
Editorial: Another example of government waste
Investigators with the Government Accountability Office tell us approximately $1.4 billion was spent by the government on autism research between 2008 and 2012. That is the good news.
The bad news is as much as 84 percent of that money was spent on redundant research.
Duplication of research netted the Interagency Autism Coordinating Committee and the agencies involved national recognition for fiscal redundancy, waste and abuse. Imagine. More than $1 billion was simply tossed down the drain, when it could have been used in more areas of autism research.
GAO investigators found the problem, as is typical of the federal government, is communication. In one instance, five departments were awarded roughly $15.2 million for 20 research projects that all had the same goal. The Interagency Autism Coordinating Committee “may have missed opportunities to coordinate federal autism activities and reduce duplication of effort and resources,” the GAO said.
Even without the concern for so much taxpayer money tossed out the window, researchers should also be worried about the avenues they are failing to explore when they chase the same projects.
With a growing number of autism diagnoses each year, poor communication on the part of the federal government is no excuse for greedy researchers begging for money they have no intention of using wisely.
It’s not uncommon to read a headline in your local newspaper about a new report exclaiming the presence of an increase or decrease in the number of people affected by a certain disease. If there is a significant increase, these reports can cause people to be concerned and anxious.
But before you consider this information to be factual and reliable, it’s important to determine how these figures were ascertained.
For example, the reason for the increase in the number of people being diagnosed with a certain malady may not be because more people actually have the disease, but due to the use of new diagnostic tests such as MRIs or blood studies, allowing us to now be able to make the diagnosis. It’s not due to some type of epidemic causing the increase.
Dr. Feingold is the president of an organization for children who are born health problems or “genetic diseases.” No one has ever been able to show us the genes that cause autism. Autism is a once-rare disease that this now so common that everyone knows someone with an autistic child and no health official can tell us why.
Any disorder that increases from one in 10,000 to one in every 50 or one in every 88 children (depending on which statistic you care to believe) in the course of a couple of decades couldn’t possibly be solely genetic. The one undeniable fact about autism is that it’s a disorder that affects children. No one has ever been able to show us a comparable rate among adults, especially adults with severe autism, whose symptoms are obvious to all.
That simple fact should be scaring us all.
Maybe when this generation of children with autism ages out of school and is dependent on the taxpayers for their support and care, we’ll get serious about honestly and thoroughly addressing what’s making our kids so sick.
Let’s do everything to pretend that autism is a genetic disorder. Too bad if it’s YOUR CHILD. It’s YOUR BAD GENES.
Mar 6, 2014 Blood test to determine autism risk, researchers hope
Diagnosing children with autism spectrum disorders isn’t easy, but a group of researchers is hoping to come up with a simple blood test to identify children who may be at risk.
Doctors at University of North Carolina at Chapel Hill’s Aspire program currently study developmental, social, cognitive and behavioral signs to help diagnose children, and they’re now a part of a North American study that hopes to add blood testing to those checklists.
In Israel, a lower percentage of ultra-Orthodox and Arabic children are diagnosed with autism compared with the general population – and no one is quite sure why. . . .
There are several possible explanations for the findings, including lower awareness and a lack of services immediately available to Israeli Arabs and ultra-Orthodox Jews, he said. Others suggested that culture gaps between Arabic or ultra-Orthodox Jewish children and those diagnosing them, as well as language differences, could play a role. . . .
From the time of diagnosis to the end of children’s schooling at age 18, about $544,000 – almost 2 million shekels – is spent on each child with autism for daycare, family services, school assistance and more.
“So actually, everything looks wonderful, but it’s not so easy,” he said.
The majority of these services are offered at standardized schools and places in larger and more established cities; children with autism in more rural areas have more difficulties accessing services – another problem those involved with Autism Spectrum Disorders research and treatment hope to improve.
“From Canada, it looks strange to say we have central points and periphery – because the periphery is probably the size of Toronto,” Ornoy said, to laughter. “But in the periphery, we don’t have these services described. There are fewer services for children.”
I have hard time envisioning people laughing during this talk…as it is described. No matter. It’s just more of the mystery.
SO…do ultra-Orthodox Jews vaccinate like the general population? What about Arabs? What about the use of pig cells in vaccines?
There’s now a new center in Lynchburg to help both children and their families understand and deal with being diagnosed with autism. . . .
Dr. Jitendra Annapareddy refers to Autism as a ‘Journey. When he joined Centra last year, his goal was to create a treatment center that would be there for the whole ride.
“We can follow these children throughout their lives, so they can become successful adults,” Annapareddy said.
Why? Why is there a need for a new autism center? Why are there so many children now diagnosed with autism?
The key word here is children. The rate of one in 88 comes from studies of 8 year olds, not eighty year olds. No one has ever found a comparable rate among adults–especially adults with severe autism whose symptoms are obvious to all. That simple fact should be scaring us all.
Officially, there’s no known cause or cure for autism. There’s nothing a mainstream doctor can tell a new mother whose baby was born healthy and is developing normally so that her child too doesn’t end up on the autism spectrum by age two.
Maybe when we have to pay for this generation of disabled children as adults we’ll get serious about honestly and thoroughly address what’s making our children so sick.
I want to thank the perceptive and hard-working Congressional staffers who wrote the Government Accountability Office’s report on autism research. The GAO report is similar to the work of the IACC support staff: the record keeping is excellent the portfolio analysis, the publications analysis exceptionally well done. If only the actual NIH autism grants were half this good….
The GAO report is comprehensive, well researched and, perhaps, most importantly of all, truly representative of the interests and concerns of American families affected by autism. It is also worth noting that the correct, most judiciously spent, portfolio of autism research is in the best interest of every taxpayer.
Thank you, Katie, for again pointing out that IACC has done nothing significant in the face of a health care disaster we all know as autism. Boyd Haley, PhD, from the U of KT who sounded an alarm about mercury exposure in vaccines a number of years ago, once said, “If you don’t want to find something, look where it’s not.”
That pretty much says it all when it comes to the money wasted on dead-end research designed to give us no answers about autism and continue the myth that it’s the result of bad genes.
Anne Dachel, Media